Publications: MISS Sara Paparini

Hayes R, Smith AKJ, Paparini S, Apea V, Holt M, Orkin C ( 2026 ) . ‘Outbreak distress’: Characterising moral distress among international healthcare workers responding to mpox . Global Public Health vol. 21 , ( 1 )

Hibbs SP, Chipare I, Halawani AJ, Legge SE, Fell G, Dees D, Roberts DJ, Gleadall NS et al. ( 2026 ) . Multinational assessment of absolute neutrophil counts and white blood cell counts among healthy Duffy-null adults . Blood vol. 147 , ( 3 ) 290 - 298 .

Dhairyawan R, Paparini S, Smuk M, Sidat S, Mbewe R, Petretti S, Martin V, Dakshina S et al. ( 2025 ) . Supporting long‐term engagement in HIV clinical care: Learning from the COVID‐19 pandemic . HIV Medicine

Paparini S, Hayes R, Kasadha B, Apea V, Burns F, Orkin C ( 2025 ) . Balancing solidarity, normality and trust: reasons for (non-)participation in an injectable HIV antiretroviral therapy study in the United Kingdom . International Journal for Equity in Health vol. 25 , ( 1 )

Pasin C, Weil B, Hayes R, Siddiqui Q, Whelan I, Nutland W, Maatouk I, Orkin CM et al. ( 2025 ) . ‘It was something that I let slip by the wayside’: a qualitative study of challenges to equitable mpox vaccination in the UK outbreak response . BMC Public Health vol. 25 , ( 1 )

Nyikavaranda P, Gkiouleka A, Paparini S, Ford J ( 2025 ) . P06 Improving access, experience, and outcomes for Black men in mental health services in the UK: a rapid review . Conference: SSM Annual Scientific Meetinga41.1 - a4a41 .

Orkin C, Paterson A, Elias A, Smuk M, Ring K, Volny-Anne A, Calmy A, Hazra A et al. ( 2025 ) . Establishing shared definitions of virological failure and discontinuation for long-acting injectable cabotegravir and rilpivirine therapy (the CONSENSUS-LAI Study): an international survey and Delphi process . The Lancet HIV vol. 12 , ( 9 ) e649 - e659 .

Hayes R, Smuk M, Kasadha B, Halim N, Apea V, Paparini S, Orkin CM ( 2025 ) . Achieving equitable recruitment through inclusive protocol design: lessons learned from the ILANA study . Trials vol. 26 , ( 1 )

Haider M, Scott S, Dumagat A, Lamb BW, Paparini S, Rajan P ( 2025 ) . What Are the Barriers to Early Detection of Prostate Cancer for Black Men in the UK? . Trends in Urology & Men's Health vol. 16 , ( 1 )

Haider M, Leow JJ, Green JSA, Dhillon C, Wong AS, Zhou Y, Paparini S, Lamb BW et al. ( 2025 ) . Sociodemographic landscape of suspected prostate cancer referrals and diagnoses across North East London . BJUI Compass vol. 6 , ( 2 )

Paparini S, Hayes R, Weil B, Nutland W, Maatouk I, Wi T, Orkin CM, Lewis R ( 2025 ) . “If that would have lessened my symptoms, that would have been great...”: a qualitative study about the acceptability of tecovirimat as treatment for mpox . BMC Medicine vol. 23 , ( 1 )

Hibbs SP, Chipare I, Halawani AJ, Legge SE, Fell G, Alhamzi AA, Shingenge E, Alabdly MJ et al. ( 2024 ) . Multinational Assessment of Absolute Neutrophil Counts and White Blood Cell Counts Among Healthy Individuals with the Duffy Null Phenotype or Genotype . Blood vol. 144 , ( Supplement 1 ) 2531 - 2531 .

Orkin C, Hayes R, Haviland J, Wong YL, Ring K, Apea V, Kasadha B, Clarke E et al. ( 2024 ) . Perspectives of People With HIV on Implementing Long-acting Cabotegravir Plus Rilpivirine in Clinics and Community Settings in the United Kingdom: Results From the Antisexist, Antiracist, Antiageist Implementing Long-acting Novel Antiretrovirals Study . Clinical Infectious Diseases vol. 80 , ( 5 ) 1103 - 1113 .

Edwards J, Paparini S, Nutland W, Samba P ( 2024 ) . Findings from the ‘Ask Me About PrEP’ HIV Pre‐Exposure Prophylaxis Awareness Programme in England . Journal of Evaluation in Clinical Practice vol. 31 , ( 5 )

Paparini S, Whelan I, Mwendera C, Hayes R, Maatouk I, Lewis R, Nunez MP, Mozalevskis A et al. ( 2024 ) . Prevention of sexual transmission of mpox: a systematic review and qualitative evidence synthesis of approaches . Infectious Diseases vol. 56 , ( 8 ) 589 - 605 .

Storer D, Holt M, Paparini S, Haire B, Cornelisse VJ, MacGibbon J, Broady TR ( 2024 ) . Informed, but uncertain: managing transmission risk and isolation in the 2022 mpox outbreak among gay and bisexual men in Australia . Culture Health & Sexuality vol. 27 , ( 1 ) 16 - 31 .

Hayes R, Dakin F, Smuk M, Paparini S, Apea V, Dewsnap C, Waters L, Anderson J et al. ( 2024 ) . Cross-sectional survey of sexual health professionals’ experiences and perceptions of the 2022 mpox outbreak in the UK . BMJ Open vol. 14 , ( 1 )

Dakin F, Rai T, Greenhalgh T ( 2023 ) . Supporting your support staff during crises: recommendations for practice leaders to develop a relational workplace . BMJ Leader vol. 7 , ( Suppl 2 ) 1 - 7 .

Howe A, Wan YI, Gilleece Y, Aebi-Popp K, Dhairyawan R, Bhagani S, Paparini S, Orkin C ( 2023 ) . Gender and ethnicity intersect to reduce participation at a large European hybrid HIV conference . BMJ Leader vol. 8 , ( 3 ) 227 - 233 .

Wan YI, Smuk M, Pearse RM, Paparini S, Apea VJ, Orkin CM ( 2023 ) . Clinical research in the NHS: a cross-sectional study of research engagement during the monkeypox pandemic . BMJ Leader vol. 7 , ( Suppl 2 )

Orkin C, Paparini S, Thornhill JP, Apea V, Mwendera CA, Smuk M, Hayes R, Anderson J et al. ( 2023 ) . SHARING to create knowledge in a crisis . BMJ Leader vol. 7 , ( Suppl 2 )

Farooq HZ, Apea V, Kasadha B, Ullah S, Hilton-Smith G, Haley A, Scherzer J, Hand J et al. ( 2023 ) . Study protocol: the ILANA study – exploring optimal implementation strategies for long-acting antiretroviral therapy to ensure equity in clinical care and policy for women, racially minoritised people and older people living with HIV in the UK – a qualitative multiphase longitudinal study design . BMJ Open vol. 13 , ( 7 )

Whelan I, Strachan S, Apea V, Orkin C, Paparini S ( 2023 ) . Barriers and facilitators to HIV pre-exposure prophylaxis for cisgender and transgender women in the UK . The Lancet HIV vol. 10 , ( 7 ) e472 - e481 .

Green J, Hanckel B, Petticrew M, Paparini S ( 2022 ) . Case study research and causal inference . BMC Medical Research Methodology vol. 22 , ( 1 )

Paparini S, Whitacre R, Smuk M, Thornhill J, Mwendera C, Strachan S, Nutland W, Orkin C ( 2022 ) . Public understanding and awareness of and response to monkeypox virus outbreak: A cross‐sectional survey of the most affected communities in the United Kingdom during the 2022 public health emergency . HIV Medicine vol. 24 , ( 5 ) 544 - 557 .

Paparini S, Papoutsi C, Murdoch J, Green J ( 2021 ) . Evaluating complex interventions in context: systematic, meta-narrative review of case study approaches . BMC Medical Research Methodology vol. 21 , ( 1 )

Paparini S, Green J, Papoutsi C, Murdoch J, Petticrew M, Hanckel B ( 2020 ) . Case study research for better evaluations of complex interventions: rationale and challenges . BMC Medicine vol. 18 , ( 1 )

Papoutsi C, Paparini S, Shaw S ( 2020 ) . We Need to Talk About Complexity in Health Research: Findings From a Focused Ethnography . Qualitative Health Research vol. 31 , ( 2 ) 338 - 348 .

Lanyon C, Seeley J, Namukwaya S, Musiime V, Paparini S, Nakyambadde H, Matama C ( 2020 ) . “Because we all have to grow up”: supporting adolescents in Uganda to develop core competencies to transition towards managing their HIV more independently . Journal of the International AIDS Society vol. 23 , ( Suppl 5 )

Bernays S, Lanyon C ( 2020 ) . Adolescents Living With HIV: Checking Unhelpful Terminology . Journal of Adolescent Health vol. 67 , ( 4 ) 477 - 478 .

Bonell C, Allen E, Warren E, McGowan J, Bevilacqua L, Jamal F, Sadique Z, Legood R et al. ( 2019 ) . Modifying the secondary school environment to reduce bullying and aggression: the INCLUSIVE cluster RCT . Public Health Research vol. 7 , ( 18 ) 1 - 164 .

Tancred T, Melendez-Torres G, Paparini S, Fletcher A, Stansfield C, Thomas J ( 2019 ) . Interventions integrating health and academic education in schools to prevent substance misuse and violence: a systematic review . Public Health Research vol. 7 , ( 17 ) 1 - 244 .

Ponsford R, Thompson C, Paparini S ( 2019 ) . We need a renewed focus on primary prevention to tackle youth knife violence . The BMJ vol. 365 ,

Tancred T, Paparini S, Melendez-Torres GJ, Fletcher A, Campbell R ( 2018 ) . Interventions integrating health and academic interventions to prevent substance use and violence: a systematic review and synthesis of process evaluations . Systematic Reviews vol. 7 , ( 1 )

Bernays S, Paparini S ( 2018 ) . A Failed Method? Reflections on Using Audio Diaries in Uganda With Young People Growing Up With HIV in the BREATHER Trial . Qualitative Health Research vol. 29 , ( 5 ) 719 - 730 .

Tancred T, Paparini S, Melendez-Torres GJ, Fletcher A, Bonell C ( 2018 ) . A systematic review and synthesis of theories of change of school-based interventions integrating health and academic education as a novel means of preventing violence and substance use among students . Systematic Reviews vol. 7 , ( 1 )

Paparini S, Nutland W, Rhodes T, Nguyen V-K ( 2018 ) . DIY HIV prevention: Formative qualitative research with men who have sex with men who source PrEP outside of clinical trials . PLOS ONE vol. 13 , ( 8 )

Namukwaya S, Paparini S, Seeley J ( 2017 ) . “How Do We Start? And How Will They React?” Disclosing to Young People with Perinatally Acquired HIV in Uganda . Frontiers in Public Health vol. 5 ,

Skovdal M, Wringe A, Seeley J, Renju J, Paparini S, Wamoyi J, Moshabela M, Bernays S ( 2017 ) . Using theories of practice to understand HIV-positive persons varied engagement with HIV services: a qualitative study in six Sub-Saharan African countries . Sexually Transmitted Infections vol. 93 , ( Suppl 3 )

Bukenya D, Wringe A, Moshabela M, Skovdal M, Ssekubugu R, Renju J, Bonnington O ( 2017 ) . Where are we now? A multicountry qualitative study to explore access to pre-antiretroviral care services: a precursor to antiretroviral therapy initiation . Sexually Transmitted Infections vol. 93 , ( Suppl 3 )

Bernays S, Paparini S, Seeley J ( 2017 ) . “Not Taking it Will Just be Like a Sin”: Young People Living with HIV and the Stigmatization of Less-Than-Perfect Adherence to Antiretroviral Therapy . Medical Anthropology vol. 36 , ( 5 ) 485 - 499 .

Bernays S, Paparini S, Seeley J ( 2017 ) . Qualitative study of the BREATHER trial (Short Cycle antiretroviral therapy): is it acceptable to young people living with HIV? . BMJ Open vol. 7 , ( 2 )

Butler K, Inshaw J, Ford D, Bernays S, Scott K, Kenny J, Klein N, Turkova A et al. ( 2016 ) . BREATHER (PENTA 16) short-cycle therapy (SCT) (5 days on/2 days off) in young people with chronic human immunodeficiency virus infection: an open, randomised, parallel-group Phase II/III trial . Health Technology Assessment vol. 20 , ( 49 ) 1 - 108 .

Rhodes T, Closson EF, Paparini S ( 2016 ) . Towards “evidence-making intervention” approaches in the social science of implementation science: The making of methadone in East Africa . International Journal of Drug Policy vol. 30 , 17 - 26 .

Mazanderani F, Paparini S ( 2015 ) . The stories we tell: Qualitative research interviews, talking technologies and the ‘normalisation’ of life with HIV . Social Science & Medicine vol. 131 , 66 - 73 .

Doyal L, Anderson J ( 2009 ) . ‘You are not yourself’: Exploring masculinities among heterosexual African men living with HIV in London . Social Science & Medicine vol. 68 , ( 10 ) 1901 - 1907 .

Paparini S, Doyal L ( 2008 ) . ‘I count myself as being in a different world’: African gay and bisexual men living with HIV in London. An exploratory study . AIDS Care vol. 20 , ( 5 ) 601 - 605 .

Wan YI, Smuk M, Pearse RM, Paparini S, Apea VJ, Orkin CM . Clinical academics in the NHS: a cross-section study of research engagement during the monkeypox pandemic .

Howe A, Wan Y, Gilleece Y, Aebi-Popp K, Dhairyawan R, Bhagani S, Paparini S, Orkin C . Gender and ethnicity intersect to reduce participation at a large European Hybrid HIV Conference .

Hibbs SP, Chipare I, Halawani AJ, Legge SE, Fell G, Dees D, Alhamzi AA, Shingenge E et al. . Multinational Assessment of Absolute Neutrophil Counts and White Blood Cell Counts Among Healthy Duffy Null Adults .

Paparini S, Whitacre R, Smuk M, Thornhill J, Mwendera C, Strachan S, Nutland W, Orkin C . Public understanding, awareness, and response to monkeypox virus outbreak: A cross-sectional survey of the most affected communities in the United Kingdom during the 2022 public health emergency .

Farooq HZ, Apea V, Kasadha B, Ullah S, Hilton-Smith G, Haley A, Scherzer J, Hand J et al. . The ILANA study: a paradigm shift in ensuring equity of clinical implementation in HIV research .